tag:blogger.com,1999:blog-904549328633281146.post402847999657965138..comments2023-10-10T18:58:13.349-07:00Comments on Life After a Jefferson Fracture: Who's this for?Unknownnoreply@blogger.comBlogger2125tag:blogger.com,1999:blog-904549328633281146.post-62145916677964049322009-10-08T00:35:57.177-07:002009-10-08T00:35:57.177-07:00Oh dear friend, Lisa, I'm so sorry things are ...Oh dear friend, Lisa, I'm so sorry things are continuing to decline to this point for you!!<br /><br />Maybe I will find a Portland, OR doctor who will do fusions? I somehow have a feeling that I'm going to. Maybe I'll find someone who can help us, even tho I know that is a long ways still from where you live!<br /><br />I know that feeling too about how your pain influences your family. My poor husband seems to have more pain and depression on the days I feel the worst. It's hard.<br /><br />It does sound like you are very unstable! If you get L'Hermittes while just wiping off the table! I don't think TCI will ever be much help to those like us, ever again. We are perhaps too much of a liability.<br /><br />I hear your pain through your words. Just hang on...hold fast...hold on to your faith. I know you will. Remember, Joy comes in the morning.<br /><br />up late too<br />hugs<br />VirginiaBy His Gracehttps://www.blogger.com/profile/11161143109074230058noreply@blogger.comtag:blogger.com,1999:blog-904549328633281146.post-25846251239475267422009-10-08T00:19:16.424-07:002009-10-08T00:19:16.424-07:00Virginia,
I am living every word you describe in ...Virginia,<br /><br />I am living every word you describe in this post. Thank you for posting what I don't have time to think through & what no one I know understands. Your words me safely grieve through the reality of what our worlds have become.<br /><br />A month ago I could wipe the table and take a pill to make the resulting pain better. Now I get electrically sapped while wiping the table. I'm getting worse daily.<br /><br />But TCI can't help as they don't know to do a fusion for me. No Alaska doctors can help. My insurance company has contacted other neurosurgeons and one will take me on.<br /><br />My family life has revolved around my pain. How do we remodel the house so I can reach the drinking glasses? How do we handle Thanksgiving when I can't cook or even be up for company? How do we eat when mom doesn't do the meals anymore... We are managing just fine, but it's a daily adjusting and I don't know how much worse it's going to get.<br /><br />I'm a strong born again believer. I don't know what God has in store. Maybe my not being able to use my arms will strengthen my family and friends. Maybe it will bring others to Christ. Maybe my chronic pain will be a light to unbelievers. Maybe God will heal me.<br /><br />But at least you understand and walked my walk. I thank you greatly for your blog, especially ones like this that help me see that others suffer like I do.<br /><br />I used to read the WACA message boards and think I wasn't 1% as bad as those folks who posted. Now I'm 42 and am that bad. I thought my TCI decompression, tether cord surgery and neurstimulotar implant would fix me. Those things all helped greatly. But I'm still deteriorating and pain pills don't help.<br /><br />I'm blessed to have sincere, sympathtic pain doc, rheumatoid doc, primary doc, ob/gyn, endocronologist, allergist. Last month I even found a sympathetic pharmacist!<br /><br />But daily deteriorating, insomnia, 24/7 pain and loss of function continues.<br /><br />Your blog is a gift to us fellow Christian and non Christian sufferers.<br /><br />Thank you and God bless you.<br /><br />Lisa in AlaskaAnonymousnoreply@blogger.com