[Among those in the Chiari (and related disorders) circle, we use a lot of abbreviations since everyone is weak and tired, in pain and the computer doesn't help much! NSG is shorthand for "neurosurgeon."]
I will be going back to Portland, OR on Monday, March 8, to see my neurosurgeon and get the results of the SPECT scan and the lumbar MRIs. I am prepared to hear that it shows nothing and there is nothing that can be done. I have been through so much with so many NSGs that I have become jaded, and in order to protect myself from disappointment and grief, I must prepare myself to hear that it's all been a waste of time and there is no help, not even: "We see how badly you are damaged but there's nothing we can do."
I thought I'd post here how much the SPECT scan cost my insurance company. $2885. The Lumbar MRI with and without constrast was $973. Sometimes, it helps to know the ballpark of what a test costs, so I've included that here.
I'll let you know what I find out on Monday.
Thanks for listening!